Rare Disease Advocacy and Research: How Patient Registries are...

أضاف وظيفة جديدة Health

2025-12-18 11:04:20 -

Rare Disease Advocacy and Research: How Patient Registries are Shaping IgG4-RD Data in 2025

For a long time, patients with IgG4-related disease felt like they were on an island. Because the disease was so rare and poorly understood, finding a doctor who had even heard of it was a challenge. However, by 2025, the landscape has been transformed by the power of patient advocacy and global research registries. Organizations like The IgG4ward! Foundation have worked tirelessly to connect...

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